Showing posts with label Chiari Malformation. Show all posts
Showing posts with label Chiari Malformation. Show all posts

Sunday, September 29, 2013

Blessing in Disguise

I *hope* that this is a blessing in disguise. I don't like it anymore than if it wasn't. So, as you know that we went to the Neurosurgeon for Layla on Thursday. I went in with a list of questions, but when the Neurosurgeon came in, he had already seen the MRI results and showed us what they looked like, etc. Then he proceeded with now we need to talk surgery! It was a thought that it MAY be needed but I think I was a bit more on the optimistic side of it because all my questioned revolved around if she didn't need surgery and restrictions to not make it worse, etc. So it just seemed from then on, I was baffled, I didn't have any questions because the ones I had were now irrelevant! Needless to say, Thursday was not a normal day for any of us, my mother in law went with me and we heard the doctor and understood but I believe that our minds were protecting ourselves by not allowing us to fully grasp the situation. My 4 YEAR OLD daughter is going to undergo brain surgery. There's no good way to look at it except that the doctor who is doing it (we looked him up!) is good at what he does since he's apparently the Chief of Pediatric Neurosurgery at the hospital that we're taking her to! There WAS good news however, he believes that her scoliosis is caused by her Chiari Malformation (why she's having the surgery) so he believes that after the surgery AS SHE GROWS that it will correct her scoliosis (the blessing in disguise because that means she *may* not need surgery to place rods in her back for the scoliosis.) It probably won't fix it 100% but if it improves it dramatically and no complications happen from the surgery then I'm very happy. But as Mom, I'm terrified! I'm happy that she has a GOOD doctor to take care of her, but it still is what it is and scares me to death. So, if you would, on October 16th, the day of her surgery, just put out good vibes out for her whether it be prayers or whatever it is that you practice, I would appreciate it! My little girl has gone through so much and I know it still could be far worse, but I don't like when ANY kid has to go through so much so early in life.

Thanks for reading :)


Sara

Wednesday, September 25, 2013

Wish Us Luck!

It's been a little crazy around here so I haven't wrote a review this week, but I'm not forgetting about any of you readers! I'll write a review on Friday, but I've been a little anxious for what is to come tomorrow! I have a 4 year old daughter, Layla who has scoliosis. She had been complaining of pain in her back so I made sure to mention it to her Orthopedic Surgeon about it. He said that was something that they take very seriously-- when they start complaining of pain. So he said that he wanted to have a MRI done! We had the MRI done last month and they called back with the results-- She has been diagnosed now with Chiari Malformation Type 1. So, they led us to a Neurosurgeon who we meet with tomorrow morning! It's for a consultation and in the visit, they'll be able to tell me whether Layla's case is mild or severe. I hope it goes well! I've been scared out of my mind since I've found out that she has it! I knew nothing about it but then reading what I could on the internet is terrifying! At least tomorrow, I'll get some answers about Layla's particular case and either be worried about what IS happening or NOT worrying about what isn't happening for her! Either way, I'll be informed and that sometimes is just the biggest helper! It's not fun NOT knowing!

So if you could be so kind to keep us in your thoughts or prayers! I'd appreciate it!